I got my medicine ordered today so I should have the shots Tuesday. That is great because I will only miss one dose but the bad thing is my copay more than doubled but I will see if MSLifelines can help me get the copays back down. Speaking of Rebiff I went to MS.org to look up rebiff they listed the side effects of the medicine that include : Depression and risk of suicide
Liver problems
Risk to pregnancy
Injection-site problems
Severe allergic reactions. Allergic reactions are rare and may be associated with difficulty in breathing and loss of consciousness, which require immediate medical attention.
The most common side effects with Rebif are:
Injection-site reactions
Flu-like symptoms (fever, chills, muscle aches, tiredness)
Depression
Abdominal pain
Increased liver enzymes
Blood cell count decreases
So I better watch out on the medicine.
Lunch over so more later.
Thursday, September 30, 2010
Wednesday, September 29, 2010
Missed Injection
I missed my injection today. I am running short on shots so i skipped today. Learning how to give myself the injections i wasted 4 shots that is a weeks worth. So i only have 2 shots left so i figured i take my shot on Friday then i will have one for next week. I don't know when they deliver the shots i will give my refiff nurse a call and find out. Anyway a little soreness otherwise everything is going fine.
Tuesday, September 28, 2010
Injection Monday
I took my injection today to start my week off. I took it in the stomach but so far no pain. I noticed my left arm was having spasms but other than that everything seems to be going well.
Sometimes I wonder if its the MS or the injections, because I take them all over my body is a reason for all the soreness, but what can you do. I hope I can get put on the pills that was just approved by the FDA. But we will see dx appointment at the end of October. I am at work so this will have to be short maybe I can get a video up soon.
Sometimes I wonder if its the MS or the injections, because I take them all over my body is a reason for all the soreness, but what can you do. I hope I can get put on the pills that was just approved by the FDA. But we will see dx appointment at the end of October. I am at work so this will have to be short maybe I can get a video up soon.
Greeting
9/26/2010
Hello everyone my name is James Langston I am 40 years old and I have MS. I was diagnosed about 3 weeks ago and have started my injections. I also have diabetes which I thought was what was giving me problems. My wife has been telling me for a couple of months that my eyes looked funny and I would forget things all the time. I did not think much of it but I started loosing my balance alot and falling down so I went to the doctor.
They could not find anything wrong with my blood work so they scheduled me a MRI to look at my brain. They noticed spots on the brain and gave me a spinal tap that confirmed the MS. I only had one relative with MS and that is by marriage and I see how debilating it can be. So I told a couple of people and someone I worked with said they had it and I have been working with him for 4 years and never noticed anything about him so I had new hope.
I take injections 3 times a week (M,W,F)and rest on the weekend kind of like a job. They said it could be hereditary but I did not know anyone that had it. But my grandmother had a stroke at 30 and died at 46 the average length they told me that a person use to live with MS now they said it is about 20 years. I often wonder if she could have had it and was misdiagnosed as that ofter happend in those days.
Anyway i wanted to chronicle my journey so if it is hereditary maybe it can help someone else. I do have two young kids and they can see what I am like if it does start to dibilate me. I will hopefully have daily post plus video post along the way.
Tomorrow will start the real postings.
Hello everyone my name is James Langston I am 40 years old and I have MS. I was diagnosed about 3 weeks ago and have started my injections. I also have diabetes which I thought was what was giving me problems. My wife has been telling me for a couple of months that my eyes looked funny and I would forget things all the time. I did not think much of it but I started loosing my balance alot and falling down so I went to the doctor.
They could not find anything wrong with my blood work so they scheduled me a MRI to look at my brain. They noticed spots on the brain and gave me a spinal tap that confirmed the MS. I only had one relative with MS and that is by marriage and I see how debilating it can be. So I told a couple of people and someone I worked with said they had it and I have been working with him for 4 years and never noticed anything about him so I had new hope.
I take injections 3 times a week (M,W,F)and rest on the weekend kind of like a job. They said it could be hereditary but I did not know anyone that had it. But my grandmother had a stroke at 30 and died at 46 the average length they told me that a person use to live with MS now they said it is about 20 years. I often wonder if she could have had it and was misdiagnosed as that ofter happend in those days.
Anyway i wanted to chronicle my journey so if it is hereditary maybe it can help someone else. I do have two young kids and they can see what I am like if it does start to dibilate me. I will hopefully have daily post plus video post along the way.
Tomorrow will start the real postings.
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